Toe Walking Sierra Visits the Neurologist

My mom and sister went back to Washington last night. This morning I woke up and everything seemed so quiet and mellow and lonely.
I was actually a little bit glad that Sierra had a neurologist appointment today just because it took my mind off of having no adults in the house again.

I spent the morning google mapping, making phone calls, bathing children, getting a bag ready with snacks and diapers and a bottle full of rice milk.

2 hours before her appointment we all headed for the car. No carseats. All the carseats are in Allan’s car.
Oh great.
How fun.
I should’ve known at that second that it was a bad omen. But I didn’t.

I went into my garage and retrieved Payson’s old infant carrier along with an extra upright carseat we have for Sierra.
I didn’t have a seat for Brooklyn and I wasn’t sure of the laws. I texted my friend, Jordan, who told me she thought Brooklyn was plenty old enough to ride without a booster. I texted chacha (love that!) and I guess the law is you don’t need a booster after the age of 5.

But being the paranoid mom I decided we’d stop at Babies R Us for a booster.

It was around 1 at this time and I hadn’t eaten a single bite of anything and I was pretty darn hungry. I also realized that though the kids had a decent breakfast it was now passed lunch time!
So we drove through at McDonald’s. Which we’ve eaten way too many times this week! And I forgot to order something for myself. Oh well.

Sierra got mad when we got to the Babies R Us parking lot because I took a bite out of one of the chicken nuggets before giving them their happy meals. She ended up throwing a fit and throwing her nuggets onto the street.

While in Babies R Us Payson screamed, Brooklyn whined and Sierra wandered. I stressed out and tried to hurry.

Brooklyn’s new booster has flowers on it which she thought was pretty darn special.

I picked up a baby carrier while I was there so that I could have something to contain Payson in at Sierra’s appointment.

By the time we got through with Babies R Us shopping, it was ten minutes to Sierra’s appointment and we were 15 minutes away. *sigh*

So we did end up getting to the office five minutes late. Which sucks! I hate being late!

We walked in… it was a place we’d never been to (Phoenix Children’s Hospital) and seeing the bright colors, toys and movie playing, Payson decided this was the perfect place to scream hysterically.

Which he does really well.

As I held a writhing, screeching toddler I started to fill out paperwork, paid a copay and pretended to hear what the receptionist was telling me.
The girls sat happily glued to the television set.

I gave Payson a bottle near the end of the paperwork. The bottle was new and leaked EVERYWHERE. I cleaned up with baby wipes but Payson’s clothes were just too saturated to be saved.
He went without pants for the rest of the appointment.

I heaved a sigh of relief when the receptionist stopped talking and said I could go sit down and they’d call Sierra in a few minutes.
I sat down and glanced from the paperwork to my children- back and forth the entire wait.

They called Sierra back and I attempted to carry the clipboard, Payson, the backpack carrier (which I hadn’t figured out yet), my camera (yes I’m way stupid), my purse, and Payson’s bottle. It wasn’t pretty.
We got to that place where they weigh the child and check their height and blood pressure.

This is where Brooklyn started in with the whining.
“Why does Sierra get to stand on that? I want to check my weight. How tall am I? Why does Sierra get to do that? When is it my turn? I want it to be MY visit! It’s not fair! I want to try that! I want to stand on that! I want a sticker with my name on it! I want to take my shoes off! Why isn’t it my turn?! Why can’t I do it? Is my turn tomorrow? Am I next? Mommy! Mommy I want to do it next! Mooommmmmyyyy! Mommmy I want to talk to the doctor! Can I check my feet? Mommy! I’m walking on my toes too!! I can stand straight! I want to sit there! I want to sit with Sierra! I want my crackers! I’m thirsty! I’m SO thirsty! I can’t waaaaaait until after! Mommy I’m too thirsty to wait until after! Mom? Mom? Mommmmmmmmyyyyyyy!

And on and on and on. She literally did not stop talking for 2 hours. In that awful whiny voice. Oh my gosh it was horrible. I tried the sternest look I could muster, whispered threats, timeouts in the waiting room, she was just gone. There was no returning to the land of sweet for Miss Brooklyn.

And Sierra during all of this? Listening and following directions. Like an angel.

And Payson? Screaming. Whining. Kicking. Squirming. Being as wretched as he possibly could.

There was a point where I swear I couldn’t go on another second. It was too much. I was completely losing it… too many things to carry, too many children to deal with, too much information, too much paperwork.

I was cursing myself for bringing all the things I brought and I was cursing myself for not bringing enough!

We finished the height/weight/blood pressure test and were sent back to the waiting room. You read that right. All that stress was just dealing with Brooklyn and Payson in the hallway! 30 minutes in and I was so wanting to go home.

I called Allan to vent about not having paid babysitters. I vowed to never take all three children to a doctor’s appointment again. Poor man got an earful.

After a while they called us back. I picked up all of our stuff (better organized with the extra fifteen minutes of waiting) and headed to the exam room.

Sierra was so cute during her exam. Her big eyes fixed on the doctor, trying her best to do exactly what the doctor wanted her to.

Meanwhile, Brooklyn sat sulking. Payson screamed. Brooklyn got into my diaper bag. Payson started kicking. Brooklyn started whining. Payson drooled in my hair. Brooklyn spilled crackers and then stepped on them. I feel Payson’s diaper get awfully warm. Brooklyn turns on a loud toy right when the doctor speaks. Payson threw his binky on the floor.

Brooklyn and Payson are both whining as loud as they can.

Intermittently there is crying.

Oh and that carrier I bought? It lasted for all of five minutes before Payson decided it was the worst place on Earth.

After what seemed like an eternity the hellish appointment was over. I was ready to cry from joy at the thought of going home.

But life isn’t that simple. Never for me, anyway.

We had to do blood work and x-rays today. Ugh.

So back to the waiting room we went. Payson’s diaper was bulging at the seems with piss even though I’d changed him twice in the last hour and a half.
Luckily I brought an extra diaper.
After a quick visit to the ladies room we all sat down to watch some monkey movie while we waited. I stared vacantly ahead while the kids were transfixed to the screen. Well, the kids minus Payson… he was running full speed around the waiting room. Stopping only to give huge grins to each and every person also waiting.

They finally called Sierra’s name for her blood to be taken. I gathered our stuff, called the girls over and picked up Payson. And I smelled something pretty darn bad.
As if this visit hasn’t been fun enough Payson has crapped. And at a perfect time, when we really needed to be getting Sierra’s blood drawn right then.

I embarrassedly told the technician that he had a dirty diaper but I’d just wait to change him until after because I knew they needed to keep the people in order.

And then she told me that if it’s the child’s first time having blood drawn the child must sit on the parent’s lap. Makes sense. Not to mention I wanted to be holding and comforting Sierra. Which meant Brooklyn had to hold Payson.

Sierra getting her blood drawn went well. She is such an angel and very brave and had no idea what was going to happen so she sat there smiling and talking and watching the needle go in…. and then she cried and said, “that hurt me” and my heart broke.

And then the technician asked what color of bandage she wanted and she immediately said, “orange” (the girl is SO decisive). They didn’t have orange so she picked pink. Then she got to pick a toy. The lady opened a drawer and Sierra immediately grabbed a stuffed blue bear (did I mention decisive?).

Then I took Payson from Brooklyn. Payson had been trying to escape from her and whining the whole time.
Brooklyn had Payson’s poop on her and had a breakdown because of that. Can’t say I blame her for that, really.

I took the kids to the car to clean up Brooklyn and Payson. I’d only brought 3 diapers from home for the 2 hour appointment. Thank freaking goodness I’d bought some large sized g-diapers today!!!

Then we had to go back in and wait to be called in for x-rays.
The girls returned to staring at the TV and Payson returned to running at full speed around the waiting room. And once again smiling at everyone he saw.

When it was time for x-rays Payson was pissed at being taken away from the waiting room. Actually probably more pissed that he was being carried and not let free to run.

I distracted him from his tantrum by looking at these marble displays they had along the hall.

In the x-ray room Brooklyn resumed her whining over how not fair it was that Sierra was getting all the attention.

Sierra sweetly followed directions and looked so so cute up on the table waiting for the pictures of her tummy.

Brooklyn whined as they did the x-rays. I swear you could feel the jealousy in the room. Brooklyn views doctor’s appointments as a similar experience to Disneyland rides. No I’m not joking.

And so she whined and whined. All the way up until I pulled out my camera and said, “I’m going to take a picture of you crying and show it to daddy and what do you think he’s going to think?”

Sierra’s x-rays were done and she got a sticker and then the x-ray techinician gave her two more to give to Brooklyn and Payson even though clearly they deserved no stickers.

I gathered my children and headed, exhausted and overjoyed to be done, to my car.

And now that you’ve pretty much experienced the whole visit with me I’ll let you know what was earned from it.
No clear understanding of what might be going on with Sierra. But some tests that will come back with some answers that hopefully cross off a few things it may be.
Appointments to schedule with physical and occupational therapy. A checkup in 2 months to go over her muscles and tendons and talk about the results.

So… getting some answers. The doctor is leaning towards it just being a habitual thing that is causing the tendons to tighten which then makes it painful to walk flat which furthers the cycle:

She walks on her toes> her tendons tighten> it’s painful to walk flat> she walks on her toes> repeat.

If this is the case the physical therapy will take care of it. If this isn’t the case the tests should reveal what it is.

And that my dear friends who’ve read this entire thing, is Sierra’s visit to the neurologist. Unfortunately it was a part one segment. lol

13 thoughts on “Toe Walking Sierra Visits the Neurologist

  • I can TOTALLY relate, but MAN you are CRAZY to be taking pictures on a day like that! When I go to the store with all three kids in tow I have actually wondered how the HECK you can do it with a camera. I gladly pay for sitters so I don't have to go through days like that and my youngest isn't even mobile yet!

  • Just want to say how much I enjoy reading your blog, been following for a long time now. My middle daughter walked on her tiptoes too, like Sierra, but it never occured to me or my husband for that matter that there was anything internally wrong or that we should have it checked out. We always joked about how she was just ahead of the curve, that tiptoe-walking was the next evolutionary step. Anyways, she did this from the time she started walking at eight months and continued until about halfway thru kindegarten. One day she just quit, just like that, never did it again and is today a very active 9 year old that plays soccer and runs completely normally. I hope little Sierra gets the same outcome. My sister is a PT, that sometimes will take peds cases, so I am going to inquire with her as this has me curious.

  • Honey, I feel your pain.

    Houston is the man of 10,000 questions, mr. impatient, mr wants a freaking answer to everything.
    mr.every out is challenge.

    He is always performing I swear and it gets so old.

    And of course what could go wrong always does.

    It truly blows.

    With Houston's issues we have to go all the time, so ofcourse he is freaked the hell out so by the end I want to leave him there and run into traffic.

    If I lived closer I would watch the kids for you so you could regain some sanity 🙂

    It sucks not living super close to family and not really having some to just say take them for an hour please I beg you 😉

  • I'm just impressed that you were able to remember everything “bad” that happened and that you took pictures in the meantime. My camera is usually the first thing to go when I have days like that. I hope the outcome of all of Sierra's testing is what you want. Whether it actually to be something and that there is a solution or to know that she will out grow it. I hope today is better for you!!

  • wow.

    I have no idea how you do it! I am scared to take only ONE child to the doctor by myself…let alone all 3!! You are superwoman! Seriously! I am loving that you actually documented this entire day with pictures! That's awesome! I have no idea how you did that either!!! Sierra looks so sweet and brave!! Mia would have come UNGLUED at the mere mention of a doctor…much less NEEDLES AND XRAYS!!! That Sierra is a brave girl! 🙂 Oh and Mia is the same way about the attention when Maggie is getting more for some reason. She hates it and is VERY jealous. Over simple things even! Anyway, I want to cry for you after reading what that visit was like! I would have lost it in the first 5 minutes! 😉

    Oh yeah, about Maggie's “God's girl” my mom got them online. I think they are from a christian book site. I will ask her. You can google God's girls though and it will probably show them. I had never heard of them before! They are “modest” Barbies that have scriptures and thing with them. Mia's is a singer and Maggie's is a Princess. They have several different kinds I think. Anyway, they are so cute and the girls LOVE them! 🙂 They have clothes and things for them just like Barbie does.

  • I have much sympathy for you! I recall a visit to the hospital for Natalie, to get her reflux checked out. It only consisted of a short visit with the dr. and an Upper GI, but with 3 small children, was NOT fun. I'm glad you all made it out in one piece and with a bit of your sanity left!

  • Wow mama, I wish I lived close to you and could help, because I completely understand appointments like that, I have had more then I can count and gosh, they are absolutely soul crushing at how difficult they are.

    I think I told you before, but our old neuro doc is actually at the Phoenix Childrens now, I wonder if you got him? If you ever want to email me about that stuff feel free, I've been through it all!

  • Well done to you for making it through that!!!! I feel stressed after just reading it!! Sierra is such a little star, I hope you get some answers soon. We are going through a similar situation wit our middle daughter, not the same medical problems but a long road is ahead until we know what is wrong & how we can help her. Its not fun is it? Take care of yourself. xx

  • Ariana, that is one whopper of a day with the kids. I could feel my blood pressure rising as I read along. So many outings with all three of my kids and just myself as the adult feel exactly like you were describing. I'm sorry you had such a rough time. Being a mom is hard work!! I hope they find you some answers soon for Sierra's sake and yours so you don't have to repeat that!

    Have you ever tried to find a sitter? I haven't used it myself as I've never even left my children with anyone other than my mom and sister as of yet, but I know one family who has used it and really likes it. I know you would probably pay more than you would a teenage girl you know, but maybe something like that could come in handy for you at times like these.

  • oh my!!! it is crazy with all the kids sometimes but oh what a joy others..
    I am so glad I found your blog again!! I hope to keep coming back 🙂
    great story telling!!

Leave a Reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.